Our Changing World – Neurogenetics
Afternoons - A podcast by RNZ - Joi
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Two New Zealand patients will be the first participants in the world to join a phase 1 clinical trial to test the safety of a new therapy for myotonic dystrophy – a rare neurogenetic condition. It's one example of how New Zealand’s neurogenetic registry and biobank is helping patients here gain access to international clinical trials. Claire Concannon learns more.